Emma's Story
Globally, more than 3 million people live with a colostomy due to conditions like colorectal cancer, Crohn's disease, and ulcerative colitis, with over 100,000 new cases each year. These individuals often face emotional challenges—about 90% experience varying levels of psychological distress. For them, simple tasks like working or falling in love might feel like distant dreams.
Emma’s mother was one of those 3 million. Five years ago, she shared over the phone how she would wake up at 3 a.m. every night with stomach pain and gas. Her weight had also noticeably dropped. Emma rushed back to her hometown to take her mother to the doctor, where they found out she had mucinous adenocarcinoma, a type of colorectal cancer. The news left Emma in shock, especially since her mother had consistently undergone health check-ups, but had never had a colonoscopy, which could have detected the issue earlier.
Three days later, her mother was in surgery. Though she thought she was only dealing with a benign tumor, it turned out the cancer was only 3 centimeters away from her rectum. The chances of saving her rectum were slim, and she would need a colostomy. Her mother struggled with the reality, but eventually agreed to the doctors’ recommendation.
After the surgery, Emma’s mother had to face the reality of living with a colostomy bag. Initially, her emotions were low, and she barely wanted to leave the house. She constantly worried about odors or leaks affecting her social life. She would spray perfume before going out to mask any potential smell, and whenever she encountered a strange odor on the street, she would instantly become anxious, wondering if it was coming from her.
At home, her discomfort continued. She refused to let Emma help her with bathing and wouldn’t allow her to come too close. Despite the challenges of her diagnosis and surgery, the first time Emma saw her mother cry was during her first bag change. She felt like a burden to Emma, not wanting to impose.
However, Emma was always there to encourage her, reminding her that the colostomy bag would not hinder her from living a normal life. Determined to help, Emma took the time to learn about stoma care and discovered products that were more comfortable and suitable for her mother’s needs. She even helped her mother find the best colostomy bags, improving her comfort significantly.
Over time, Emma’s mother gradually adapted to her new way of living. With Emma by her side, she began to participate in social activities again and slowly regained her enthusiasm for life. Emma even took her mother to a gathering for ostomy patients, where she met others who shared similar experiences. They exchanged personal stories and tips for managing their colostomy bags, offering her mother a strong sense of support and belonging.
Emma’s mother also joined a rehabilitation program for ostomy patients, where she realized that having a colostomy didn’t prevent her from doing things she enjoyed. She was able to engage in activities like light hiking and yoga. Little by little, she regained her confidence and began helping other new ostomy patients, passing on the lessons she’d learned through her own experience.
Now, Emma’s mother not only thrives in her life with a colostomy, but she also volunteers at a local ostomy support group. She uses her journey to inspire others, showing them that a positive attitude and support from family and the community can bring hope and light even in challenging times.
4 Warning Signs of Colorectal Cancer
Colorectal cancer is one of the most common cancers in Western countries, especially among those over the age of 50. Early detection greatly improves the chances of survival. Here are four warning signs that should not be ignored:
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Blood in Stool: Blood mixed in with stool, especially darker blood, can be an early sign of colorectal cancer. Unlike hemorrhoids, which cause bright red blood that’s typically not mixed with stool, colorectal cancer causes darker, more tar-like blood.
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Abdominal Discomfort: Some colorectal cancer patients experience consistent abdominal pain, bloating, or cramps. If a lump can be felt in the abdomen, this could also be a sign.
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Changes in Bowel Habits: If you notice a sudden change in bowel movements, such as alternating between diarrhea and constipation, or thin, ribbon-like stools, it’s time to get checked.
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Unexplained Fatigue or Weight Loss: As colorectal cancer progresses, it can cause anemia and lead to fatigue, unexplained weight loss, and a general feeling of weakness.
The Importance of Colonoscopy
In Western countries, regular colonoscopies are considered the most effective way to detect colorectal cancer. People over 50, or those with a family history of colorectal cancer, should have regular screenings. Colonoscopies can catch cancer in its early stages when it is most treatable, reducing the risk of developing advanced cancer.
Emma’s mother’s story shows us that even when life takes unexpected turns, with the support of loved ones, a positive mindset, and a strong community, it’s possible to find joy and purpose again. A colostomy is just a small part of life, and with courage and determination, anything is possible.
